2017

This year has flown by!
Had quite a few changes this year related to my healthcare including switching to a new pain care clinic. Luckily I was able to find one that also offers ketamine infusions!
Not only that but we made a pretty big discovery during my last infusion. Instead of using Versed, Valium was used and SO MANY of my bad side effects we lessened or stopped. I did not have any of the anxiety spiral, none of the intestinal cramping and vomiting once I got home and I bounced back from the infusion in 4 DAYS instead of the typical 10-15 days. Very excited about that discovery and I had no clue that Versed could have been messing with my system like that!
I was extremely fortunate to be able to find this new clinic through my fellow GBS peep, Jessie!
(Her blog is http://gbssurvivorblog.freeblog.site/)

I do plan to write a recap of some of the hurdles that came up this year, but know that in the end I was very lucky for everything to have fallen as it has.
My main pain doctor is actually an occipital neuralgia specialist that actually worked with my neurologist I have had since GBS hit and even trained his nurse practitioner! (And now we have like 5 more items on the list to try out for alternative pain treatments!) The clinic offers ketamine so I can still receive the relief that I have been from them at an affordable price. This clinic cares about the balance of quality of life and the pain scale.
While the first half of the year was quite a bit of a battle, this is rather nice to be able to look towards 2018 on such solid ground.

Happy Holidays and I hope everyone has a warm and safe New Year!

Texas Steampunk Connection!

I had a chance to stop by and chat with the Texas Steampunk Connection for a bit! Take a listen!

Turner's Tokens' Telegram

Steampunk Peeps -
I want to make a little Steampunk Zine that will be passed out for FREE at events and such and I want to highlight Projects, Events and Artists.
Think along the lines of a penny press/dime novel/penny dreadful.
Planning it to be 12 pages long, black and white, staple bound and offered for free to anyone that wants one. Right now my goal is to have 1 issue pulled together by Steampunk November.
This could be a fun way to advertise any of your projects, art pieces or story tidbits.
Feel free to join in, or just lurk here:
https://www.facebook.com/groups/1524579990927003/

May is GBS/CIDP Awareness Month!

May is GBS/CIDP Awareness Month!

Please feel free to use these cover photos on FB to help spread awareness!

GBS Blurb to include with your photo:

Guillain-Barre (gee-YAH-buh-RAY) syndrome is a rare disorder in which your body's immune system attacks your nerves. Weakness and tingling in your extremities are usually the first symptoms.

These sensations can quickly spread, eventually paralyzing your whole body. In its most severe form Guillain-Barre syndrome is a medical emergency. Most people with the condition must be hospitalized to receive treatment.

The exact cause of Guillain-Barre syndrome is unknown. But it is often preceded by an infectious illness such as a respiratory infection or the stomach flu.

There's no known cure for Guillain-Barre syndrome, but several treatments can ease symptoms and reduce the duration of the illness. Most people recover from Guillain-Barre syndrome, though some may experience lingering effects from it, such as weakness, numbness or fatigue.

Get involved and find more information online at https://www.gbs-cidp.org/.

CIDP Blurb to include with your photo:

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder -- a condition that targets your body’s nerves.

Symptoms aren’t the same for everyone, but you may be tired and have areas of numbness and pain. It can slow your reflexes and make your arms and legs feel weak. You have to have symptoms for at least 8 weeks for CIDP to be considered the cause.

Most people need treatment. And the sooner you begin it, the better the chance of a complete recovery. Sometimes symptoms go away for a long time but come back later.

Anyone can get CIDP, but it’s most common in older adults, and more in men than women. As many as 40,000 people in the U.S. may have the condition, but it’s hard to know how many people have it. CIDP isn’t easy to diagnose.

Get involved and find more information online at https://www.gbs-cidp.org/.

General Update

General
Been using my blog a bit more for my GBS experience lately.
I haven't forgotten steampunk, just had my hands a bit full lately with the health stuffs. >:3
Although I do want to say that since my regular job has picked up, I have not been able to really participate in the steampunk events nearly as much as I wish I could. Still getting back into the swing of things with learning to balance the fatigue/energy between work and life. I still definitely have some art projects on the back burners, looking forward to having some time to bring them to life!

Texas Steampunk Connection
Going to be joining in on a podcast with the Texas Steampunk Connection this weekend!
https://texassteampunkconnection.podbean.com/
If you are in TX and a Steampunk, give it a listen! Good stuffs, great topics and an enjoyable listen!

Recently Updated the 2017 Event List! 
If you have some to add, shoot me a note or comment here with the Name of Convention, Dates & Website!